We conduct research on the research use of EHRs, including patients’ willingness to share different types of clinical data with different types of researchers; patients’ perspectives on alternative approaches to obtaining their permission for data use; and stakeholder reactions to researcher contact with patients based on EHR phenotyping.
Stakeholder Perspectives on Research Use of EHRs
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Brelsford KM, Spratt SE, Beskow LM. Research use of electronic health records: patients’ perspectives on contact by researchers. Journal of the American Medical Informatics Association (2018)
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Beskow LM, Brelsford KM, Hammack CM. Patient perspectives on use of electronic health records for research recruitment. BioMed Central Medical Research Methodology (2019)
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Hammack-Aviran CM, Brelsford KM, McKenna KC, Graham RD, Lampron ZM, Beskow LM. Research use of electronic health records: patients’ views on alternative approaches to permission. AJOB Empirical Bioethics (2020)
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Beskow LM, Brelsford KM, Hammack-Aviran CM. EHR phenotyping for research recruitment: Researcher, IRB, and physician perspectives on approaches to contacting patients. Journal of Clinical & Translational Science (2020)
