2023 Annual Workshop

Welcome from the GetPreCiSe Center

Bradley Malin , Ph.D.
Co-Director, GetPreCiSe Center
Accenture Professor of Biomedical Informatics, Biostatistics, & Computer Science; Co-director, GetPreCiSe
Vanderbilt University

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CEERs: Looking Back, Looking Forward

Gail Henderson, Ph.D. (bio)
Professor of Social Medicine
University of North Carolina at Chapel Hill

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Panel on Public Perceptions of Genetic Privacy

Jay Clayton, Ph.D., William R. Kenan, Jr. Professor of English Professor of Cinema and Media Arts, and Communication of Science, Engineering and Technology

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Ayden Eilmus, Project Associate at NYU Grossman School of Medicine Division of Medical Ethics

• Clones, Zombies, and Serial Killers: How Protecting Genetic Privacy Might Save Your Life

Chris Slobogin, J.D. Milton R. Underwood Chair in Law; Director, Criminal Justice Program; Affiliate Professor of Psychiatry  

• When Can Cops Look Over Your Doctor's Shoulder? Public Perceptions of Privacy vis-a-vis Law Enforcement

Zhijun Yin, Ph.D., Assistant Professor of Biomedical Informatics and Computer Science: 

• Beyond the Academic Opinion on #GeneEditedBabies: Learning How Public Stance About a Controversial Scientific Event Differs Across Online Social Platforms

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Privacy Protection to Power a Learning Health System

Deven McGraw, J.D. (bio) 
Lead, Data Stewardship & Data Sharing
Invitae Corp.

Panel on Privacy and Identity 

Ellen Wright Clayton, M.D., J.D., Craig-Weaver Professor of Pediatrics, Professor of Law, Professor of Health Policy, Center for Biomedical Ethics and Society, Co-director, GetPreCiSe

• Are States Doing a Better Job of Protecting Genomic Privacy?

Bradley Malin, Ph.D.

• Why De-identification Really Can Work for Large Biomedical Cohorts

Victor Borza, M.D./Ph.D. Student in Biomedical Informatics

• Identity, Harmonization, and Representation in Big Biomedical Datasets

Discussion on Future of Research in Genetic Privacy and Identity

Moderated by Ellen Wright Clayton, M.D., J.D.