Complex employment journeys: Case studies of four families of adults with intellectual disability.

Background. The road to employment can be uncertain for millions of adults with intellectual disability and their families. It is important to understand how they navigate this journey and the challenges they experience.

Objective. We examined the pathways taken by four families in their pursuit of integrated employment, as well as the complexities they encountered along the way.

Method. In this longitudinal, multiple case study, we followed families across one year. They (and their mentors) completed questionnaires at the beginning of the project, we checked in with them monthly, and we interviewed them at the conclusion of the project.

Results. Five primary findings emerged from their experiences: pursuing employment is a family affair, it is an extended journey, each family’s journey is different, mentorship matters, and multifaceted support is needed.

Conclusion. Families need ongoing support and guidance to navigate their journey toward competitive employment. We offer recommendations for research and practice aimed at supporting families in this important pursuit.