Measuring what matters: Considerations for the measurement of adult services for individuals with autism.

Abstract

Services are important for many individuals with autism to achieve meaningful post-school outcomes. To understand how to improve service access, it is important to measure services in ways that capture whether an individual’s needs are truly being met. Yet, most measures of service access are simplistic, without fully taking into account the vast heterogeneity among those on the autism spectrum. In this manuscript, we highlight the key issues, challenges, and considerations in measuring service access. We provide ways a service access measure can address some of these issues while also suggesting further ways to improve the measurement of services. We conclude with implications for research, policy, and practice.