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Kost RG, Lee LN, Yessis JL, Wesley R, Alfano S, Alexander SR, Kassis SB, Cola P, Dozier A, Ford DE, Harris PA, Kim E, Lee SC, O'Riordan G, Roth MT, Schuff K, Wasser J, Henderson DK, Coller BS. Research Participant-Centered Outcomes at NIH-Supported Clinical Research Centers. Clinical and translational science. 2014 May 19.
Abstract
Although research participation is essential for clinical investigation, few quantitative outcome measures exist to assess participants' experiences. To address this, we developed and deployed a survey at 15 NIH-supported clinical research centers to assess participant-centered outcomes; we report responses from 4,961 participants.